Professor Richard Osborne
 Deakin University, Melbourne, Australia
Will be speaking on the nexus between health literacy and self management, and on the importance of measuring outcomes from self management programmes to inform policy and practice.
Professor Richard Osborne is Chair of Public Health at Deakin University, Melbourne, Australia. He is recognized internationally for his innovative research and evaluation in chronic disease self-management across a wide range of settings.
He leads a highly productive public health research programme covering patient focused outcomes measurement, priority setting, development of models of care, introduction of innovations into healthcare, workplace health and health system reform. One of Professor Osborne’s key contributions has been development of improved methods for questionnaire design which are patient focused BUT relevant to clinicians and policymakers / government agencies. He has led the development of several systems of measurement used nationally or globally in the areas of influenza symptoms and impact, the need for joint replacement surgery, and quality of life. He is known for developing Australia’s National Quality and Monitoring System for Chronic Disease Self-management Programs through the widely used heiQ (health education impact questionnaire) – a patient-focused questionnaire that informs health educators, clinicians, funders and policymakers on both the quality and impact of self-management interventions. The heiQ has been found to be remarkably robust across countries, long term conditions and interventions.
In recent years Professor Osborne's research has become deeply concerned with the poor uptake of self-management programs by marginalised groups and the role formalised self-management support programs might have in inducing health inequalities. This has led to the development of an active research programme into Health Literacy and related concepts. For the field of self-management to go forward, health programs must focus on the potentially modifiable components of burden of disease as experienced by people with long term conditions. Systems must be developed to support those individuals with limited personal, family and community resources. There appears to be a lack of understanding in the health and policy sectors of the abilities that people need to have such that they can live an acceptable life despite living with a long term condition. These observations inform his interest in Health Literacy. With key colleagues Rachelle Buchbinder and Joanne Jordan, he was redeveloped of the concept of Health Literacy, which he regards as fundamental to effective modern public health and pivotal for the reduction of health inequalities.
He is proactive in generating and disseminating policy-relevant research (working closely with policymakers, government agencies, clinical groups, and patients) and sits on several state, federal and international committees. He is convener and chair of the Australian Self-management Support Congress and in April 2009 he was co-convener of International Roundtable on Self-management support in Canada.
Professor Stanton Peter Newman
 University College London
Stanton Newman has worked at number of University of London Colleges where he has taught and performed research. He has moved from Bedford College through the London School of Economics, Guy's Hospital Medical School, The Middlesex Hospital Medical School to University College London.
He trained as an Experimental and Clinical Psychologist and currently is Professor of Health Psychology at University College London. He was head of the Department of Psychiatry and Behavioural Sciences for 10 years and before moving to head up a new centre, the Centre for Behavioural and Social Sciences in Medicine, within the Division of Medicine. This Centre has now evolved into the Unit of Behavioural Medicine, UCL.
He has a large research group working in a range of different areas. He specialises in the psychological and social issues of physical illness and its treatment and has published over 200 research papers and chapters and 12 books. His most recent book is Chronic Physical Illness: Self Management and behavioural Interventions (Edited with Liz Steed and Kathleen Mulligan - Open University/McGraw Hill Press 2009).
He is involved in the development of psychosocial interventions for patients with heart failure, post MI, diabetes and a range of other conditions. These are designed to increase patients' level of control and capacity to manage their condition and improve clinical outcomes and quality of life.
He has an interest in technology and its role in supporting people with Long Term Conditions. He has recently completed a large randomized controlled trial on the role of minimally invasive continuous glucose monitors. He is the Principal Investigator on the Whole System Demonstrator Project - a large randomized controlled trial of tele-care and tele-health for people with long term conditions and those with social care needs.
He is also engaged directly in clinical work and holds a regular clinic at University College Hospital mainly with referrals from medical and surgical colleagues in the hospital but also from primary care.
He has a wide range of outside interests and has been involved in the establishment of a Science Research Park. He was a trustee of the Medical Foundation 2003 - 2005.
Professor Tanya Packer
 School of Occupational Therapy, Dalhousie University, Canada
Prof. Tanya Packer has recently moved from Australia to Canada where she is a professor in the School of Occupational Therapy, Dalhousie University. She has considerable experience in the development and testing of disease specific self-management interventions. Her first self-management program, developed in 1995 is now used internationally as the main protocol for multiple sclerosis fatigue. Together with colleagues and a number of PhD and honors students a number of new interventions are in the process of development and testing including interventions for people with vision impairment, and care givers. Delivery via online group program is also being pioneered by the group. All have been completed in conjunction with community agencies, resulting in immediate implementation of evidence based programmes at the community level.
Tanya’s work reaches beyond development of interventions to workforce and system redesign in order to ensure strong support for people with chronic conditions. In 2006 she developed the strategic directions document for the Western Australia State-wide Self-Management Initiative and in 2007 she served as an expert on the National Reference Group on self-management competencies and curriculum development for nursing, medicine and allied health. She provided has multiple professional development seminars for health professionals from all backgrounds. Between 2007 and 2009 alone, her team has attracted close to one million Australian dollars for self-management research. The largest of these projects has led to development a state-based research framework and database for evaluation of self-management programs in Western Australia as well as development of the Quality Self-management Assessment Framework (Q-SAF). The Q-SAF allows practitioners to develop and monitor the quality of their self-management services.
With her move to Halifax, Tanya will continue her work in Australia through the Curtin Health Innovation Research Institute by combining the work there with that of her research group at the School of Occupational Therapy, Dalhousie University.
Susan Douglas-Scott
 DipCOT, BSc (Hons), Msc. Chief Executive of Long Term Conditions Alliance Scotland (LTCAS)
LTCAS aims to bring together voluntary and community organisations across Scotland to give a national voice to people living with long term conditions. LTCAS' vision is that people with long term conditions enjoy, not endure, full and positive lives.
Prior to this Susan was Chief Executive of Epilepsy Scotland. Before this, she enjoyed a nineteen years in disability services, initially as an occupational therapist. She then had five years working in sexual health and HIV.
Over the last four years, Susan has helped develop LTCAS to where it is today. She was lead author of Gaun Yersel, the Self Management Strategy for Scotland. As LTCAS' first Chief Executive, Susan is committed to the ongoing development of this agenda and of LTCAS as a growing voice for people with long term conditions in Scotland.
Adrian Sieff
 Assistant Director, The Health Foundation
Adrian is leading The Health Foundation's programme to improve the quality of health care by transforming the dynamic between the people who are responsible for the provision of health services and the people who use them. Prior to this, Adrian worked for many years in the department of Health, leading the development and delivery of policy in a variety of areas, including the Diabetes National Service Framework, mental health and reducing teenage pregnancy, as well as early thinking in the Department on patient empowerment and, more recently, on stakeholder engagement. Adrian has worked for the Audit Commission, at KPMG, in the Government's Social Exclusion Unit and in the voluntary sector. In his spare time, Adrian is a Trustee of Tzedek, which works in partnership local community organisations to support sustainable development projects in some of the world's poorest countries.
Dr Brian Williams
 Social Dimensions of Health Institute, University of Dundee
Dr Williams is a medical sociologist by background and currently Director of the Social Dimensions of Health Institute, University of Dundee & St Andrews. Throughout his career his research and publications have inhabited the overlap between sociology, psychology and anthropology. His interests have been largely focussed on the ways in which people experience their illness and the relationship between illness beliefs, experience and self-management. Investigations have ranged across diverse clinical areas including depression, schizophrenia, asthma, cystic fibrosis and cancer. Dr Williams' emphasis is on identifying novel research areas that may be of both interdisciplinary interest and clinical importance. Over the past few years this has manifest itself in an exploration of the ways in which mental and physical images influence both the experience of illness and subsequent behaviour.
Anne Kennedy
 Senior Research Fellow, National Primary Care Research and Development Centre.
I joined NPCRDC in 1995 as a health services researcher. My research centres on self-management of long-term conditions. I have co-authored a series of six self help guides for people. These were developed with patients and include both lay experiences and evidence based information and have been used in a number of randomised controlled trials.
I recently led and managed a national evaluation of the Expert Patients Programme (based on the Chronic Disease Self-management Programme).
I am currently involved in an RCT of the WISE (Whole System Informing Self-Management Engagement) approach to provide self care support in primary care and am part of the CLAHRC (Collaboration for Leadership in Applied Health Research and Care) research group who are developing information resources for people with long term conditions.
Professor Craig White
 University of the West of Scotland
Craig White is Professor of Psychological Therapies with the Faculty of Education, Health and Social Science at the University of the West of Scotland. He advises the Scottish Government Health Directorates on self-management and is Assistant Director of Healthcare Quality with Ayrshire and Arran NHS Board. Craig established the psychosocial oncology service in Ayrshire and Arran and was instrumental in the formation of the Macmillan Cancer Distress Management Team. He has written on psychological care for people living with medical problems and taught healthcare professionals in cognitive therapy and psychological care skills.
Sue Ziebland
 University of Oxford
Sue Ziebland is a medical sociologist and Reader in Qualitative Health Research at the University of Oxford. Since completing her MSc in Social Research Methods in 1986 Sue has worked as a researcher in the academic, NHS and voluntary sectors and has over 100 publications in social science and health journals and books.
Sue is research director of the DIPEx Health Experiences research group, based in the Department of Primary Health Care, University of Oxford. The group of 11 social science researchers conduct qualitative interview studies, throughout the UK, for the multimedia web sites (www.healthtalkonline.org and www.youthhealthtalk.org ) run by the DIPEx charity. The website includes analyses of the main issues identified in the interviews, illustrated with video, audio and written clips, as well as evidence based information about each condition or health issue. The site is intended for patients, their families and friends, patient representatives, and health professionals in training. Since their first projects were launched in July 2001 the site has included over 50 qualitative studies of experiences of high blood pressure, taking part in a clinical trial, the main cancers, stroke, MND, Parkinson’s, living with dying, autism and Asperger's, heart diseases, pregnancy and childbirth, cancer screening, epilepsy and chronic pain.
Sue's research interests include e-health, self care, information for choice and qualitative methods. With colleagues in the group she runs a highly regarded series of qualitative research methods courses in Oxford.
Nicola Sturgeon MSP
 Deputy First Minister & Cabinet Secretary for Health and Wellbeing
Nicola Sturgeon was born in Irvine, Ayrshire in 1970. She was educated at Greenwood Academy, Irvine and Glasgow University where she studied Law and was awarded LLB (Hons) and Diploma in Legal Practice.
Before entering the Scottish Parliament she worked as a solicitor at the Drumchapel Law and Money Advice Centre in Glasgow.
Nicola was elected to the Scottish Parliament in 1999 and again in 2003, representing the Glasgow Region. She was elected as MSP for the Glasgow Govan constituency in 2007.
Nicola joined the Scottish National Party in 1986. She is a former Convenor of the Youth Wing and a former National Vice-Convenor for Youth Affairs. She has been a member of the National Executive since 1992. Since entering the Scottish Parliament in 1999, she has been the party's spokesperson on Education, Health & Community Care and Justice. In September 2004, she was elected Deputy Leader of the Scottish National Party.
In May 2007, Nicola was appointed Cabinet Secretary for Health and Wellbeing, with responsibility for the NHS, health service reform, allied healthcare services, acute and primary services, performance, quality and improvement framework, health promotion, sport, public health, health improvement, pharmaceutical services, food safety and dentistry, community care, older people, mental health, learning disability, substance misuse, social inclusion, equalities, anti-poverty measures, housing and regeneration. |
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